How many of you have heard of Fibromyalgia? Chronic fatigue? Other invisible illnesses? How many of you have one? Today is May 12th, Fibro awareness day. I have some things to say about it. I'm sure those who read this blog aren't surprised.
I can't count how many times I've been told that my pain is all in my mind. I'm sure I'd be rich if I had a dime for every time it's been said. I've been told that all I need is to eat better. Or exercise more. Or sleep more.
I eat pretty good. I get my veggies, fiber, and other proper nutrients. I do eat a boat load of junk food but make sure I get my regular meals as well. I take vitamins. B-12, calcium, and a multi-vitamin for menopausal women. So, should that help? Of course it should.
I sleep around 8 hours a night. Sound like plenty? It's not a sound sleep. Without meds it's a restless, wakeful sleep. I've had sleep studies done. The only thing found was my REM cycle was twice as long as it should be. I hear a lot of people complain of being "tired." How tired are you? Is it just because you only slept 4-5 hours? Or is it bone deep? Like you haven't slept in weeks? That's how my tired feels. It's like I ran a marathon and haven't been able to sleep in days.
So my fatigue is a bit different than yours. I keep active even with the fatigue. Some people think I'm lazy. Yesterday? I was up at 5 AM. Cleaned my room, fed the dogs, took my dog for a walk, did laundry, cleaned the bathroom, cleaned the kitchen, ran errands with my uncle, potted a couple of plants, tried to nap, got back up and helped with the yard, and vacuumed the whole house, swept the kitchen, and more. Still think I'm lazy? It takes massive amounts of determination to do what I do.
Some days I can't get out of bed. Not won't, can't. At one point in my illness I was on 15 different medications. One to get up, one to keep my cholesterol down, several for pain, a couple to sleep, a couple for depression, and so much more. I couldn't afford them so now I'm on 4, one for depression, one for pain, a muscle relaxer, and something to help me sleep.
On top of all that I'm going through menopause. Hot flashes, night sweats, mood swings, and more. Still think I'm lazy? Still think It's all in my head? I'm not lazy and it's not all in my head.
I also have arthritis. That can be seen in x-rays and other tests. My joints swell. They get hot. They ache like a rotten tooth all the time. Still think I'm a wuss? Still think I should get a job? Still think I'm lazy? If you do than I feel sorry for you.
I should also mention the fog. I can't remember things. Sometimes it's something as simple as what I had for breakfast. Other times it's entire sections of my life. Sometimes I can't remember how to spell something simple. Or a movie that I just watched. Or birthdays. You say that everybody does that. Yes they do. But not on an epic scale like someone with fibro does.
Fibromyalgia is an invisible illness. One that doctors are recognizing more and more. Research is being done. But not enough. Hell we can't cure the common cold so I don't figure we'll find a cure in my lifetime. And with the zombie apocalypse coming I'm sure they won't find a cure in my kids lifetime. Ha ha.
Yes, I've kept my sense of humor. Without it I may as well lay down and die. But I'm stubborn. On a daily basis I fight with myself because part of me wants to give up. But another part of me wants to do more than survive. It wants to thrive. It wants to enjoy life. It wants to be more than just fatigue and pain.
So there it is. The things I don't want people to know. The things I don't want to define me. But they do. They've helped make me who I am. Survival is great. But I want to do more than survive. So I laugh. I enjoy myself. I push myself beyond my limits. I hide my pain. I hide my fatigue. I do what needs done. I hope this explains to you what it's like to be in burning pain every day. 24/7/365. To live with fatigue that's bone deep and not cured by rest.
Thanks for reading. If you have questions or comments feel free to ask or tell me what you think.